“The Global Health Doctoral Scholars Track provided me with a unique perspective on the complexities of health disparities and the importance of culturally relevant and sustainable health interventions,” said Felicia. “In an ever-changing research environment that is increasingly valuing cross-disciplinary collaboration, I do think that global health training is an important ingredient for future success.”
What resulted was
Parental Experience with Care for Children with Serious Illnesses (PRECIOUS), a quality of care measure for seriously ill children across various care settings. PRECIOUS evaluates parental experiences on five scales: hospitalisation-specific processes, reducing caregiving stressors, access to financial and medical resources, caregiver support and respectful care, and collaborative and goal-concordant care. Through an assessment of its measurement properties, it revealed a need to balance parental involvement, family support, and reducing caregiving stressors, promoting coherence in care experiences across different care settings and throughout the care trajectory.